Tuesday, December 07, 2010

My Son Has Asperger Syndrome

Back in October both of my kids were tested for Asperger Syndrome. What caused me to seek out testing for them was actually because of my daughter. Princess has been doing Neurofeedback therapy since January to help with her ADHD and Tourette Syndrome. Several months ago her therapist told me she had noticed that Princess had some symptoms of AS. I began researching about Asperger's and the more I read the more it fit Princess. So I made the appointment to see about getting testing done. They had told me that it was likely if one child has Asperger's then the other will as well. So Hubby and I decided to go ahead and have both kids tested.
Oddly enough, I went in thinking Princess would get the diagnosis, I saw the signs with her, I didn't see them with Booboo.

Princess's test came back and she has many symptoms but not enough to make a diagnosis of AS at this time. They suggested I have her reevaluated in a year or two. They confirmed again her diagnosis of ADHD and Tourette's. And recommended she be evaluated by a Occupational Therapist to confirm she has a Sensory Processing Disorder (which sensory issues are common with Asperger kids). The more I read, AS still fits her, its been proven that girls can be harder to diagnose with AS. I have a feeling that we will eventually get a AS diagnosis for Princess as well.

My son, has been diagnosed with Asperger's. 1 in 4 kids with Asperger's have a large head (macrocephaly)... Go figure (Dr.'s got worried when he was 6 months old because his head grew too fast in a short amount of time, turned out to be nothing, he just has a big head, which he is slowly growing into)... His big head is not what diagnosed him, its just one of the many factors. The main things are he's lacking social skills and has a sensitivity to sounds, textures and food (hes a ridiculously picky eater).
They recommended two different books for me to learn more about Asperger's and for parenting tips, which I already ordered online.

The testing also confirmed that both my kids are very smart and have advanced language skills. Which I already knew.

I don't want to "label" my children. Their individuals, there both unique, their NOT a diagnosis, a disorder, a syndrome or a label. But here, on the web, among the vast number of other bloggers, I feel its the best way to find and connect with other parents who have similar children. I need to find other parents for advice and support, so I know I'm not alone. I'm still learning about my children, about Asperger Syndrome and I think Ill continue to do that for a long time...


Trisha

3 comments:

  1. Wow! Thanks for this post...we are dealing with some things with my son, nothing labeled to him 'yet'. It's nice to know that behind the giveaways and reviews and fun sites we are moms dealing with life and our lovelies...you rock :)_ (nice blogmania button too!)

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  2. I'm sorry to hear that you son (and possibly your daughter) have AS. And you're dealing with ADHD too! It sounds like a lot to manage.

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  3. Oh peppermint... my tthoughts are with you.
    I caanot offer much advice, but if don't watch Parenthood on tv, catch up on the internet, the show has a family that deals with it, but I bet there is some good advice on the shows website and message board.

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